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One Procedure.
A Life Forever Changed.
This site chronicles the hope and hard things I've learned while undergoing SDR (selective dorsal rhizotomy) and the marathon of growth since the procedure.
I want to support other families and adults who are considering this journey. I’m not anyone extraordinary. I simply have a story and a perspective that might help someone else feel less alone, more informed, or more confident in their own decision.
What I Wish I Knew
Before Selective Dorsal Rhizotomy
Learn the Basics
Learn the Basics
Choosing SDR can feel overwhelming, especially when you’re trying to understand what truly matters. Start with the basics in SDR Explained for a clear, honest overview of the procedure and the journey it involves. Then visit The Why for a research-grounded look at the defining moments and considerations that shaped my own decision.
Understand the Experience
Understand the Experience
A deeper look at my SDR journey can be found in Resources and Stories. Walk through the turning points, lessons, and trusted resources that shape my progress.
My research and experience revealed three core components that consistently drive SDR success, regardless of the surgeon. Explore the considerations that matter most when choosing SDR.
Full Disclosure.
I want you to feel at ease here, so I’ll be transparent from the start. There are already excellent sites that list hospitals, surgeons, post surgery therapy programs, and exercises. When those resources are helpful, I link to them rather than trying to recreate what already exists.
My purpose is different.
I’m here to offer an older‑adult perspective... the highs, the lows, and the honest reality of making a decision like SDR later in life. I also want to share the things I wish my parents had known when I was younger. And finally, I’m trying to be the resource I wish I had when I was making this decision myself.
Please remember that every experience with CP is unique. Hope Moves Forward reflects my personal experience as an adult with CP who underwent SDR. Everything here is meant to offer clarity, perspective, and support. It is not medical advice. Nor do I represent any providers or organizations mentioned here. Your needs are unique, so always consult your medical team when making decisions about care, treatment, or surgery.
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